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Old 12-12-2005, 04:17 PM   #1 (permalink)
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Too bad real life don't work that way, eh? Today my wife's Oncologist informed us that her cancer has returned again. This is her third recurrence of a rare but aggressive simple round cell sarcoma since the original diagnosis back in Nov. '98.

This type of bone cancer (extra osteo Ewing's sarcoma) is most often found in children. There have only been about fifteen other adults in the world known to have this kind of cancer and I guess they all died by now. It has an 85% recurrence rate (statistically) and resists almost every kind of chemotherapy.

The three previous (major) operations, (several minor ones) and radiation burns on her chest wall have left her with seriously diminished lung function, both lungs have been partially resected and five ribs on her right side have been replaced with plastic.

Her recovery from the surgeries has been plagued by infection(s) and other complications (too graphic for this thread).
Lets just say I can maintain the IV antibiotics at home....


And the last thing he said before we left his office? "Try to enjoy the holiday season"


Yeah, right....


Next year (Jan.) it's off to UCSF to consult with specialists (again) to determine if there is a surgical option to remove this new tumor.


Fun, fun fun....
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Old 12-12-2005, 04:18 PM   #2 (permalink)
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Are you Canadian?
Tell me a story.Once more? Have you told many people that your wife's Oncologist informed us that her cancer has returned?You don't say.
We have never talked about it before.What does "this" refer to?Oh.
"There you go again."--ReaganWhere did it get 85% recurrence rate statistically and resists almost every kind of chemotherapy?I hear you.I'm sure she would like to hear about that.That sounds good to me.Who was that?OK I will try to enjoy the holiday seasonyes right.
Oh, you are a poet.Who said
off to UCSF to consult with specialists again to determine if there is a surgical option to remove this new tumor is?I'm glad you like it. Tell your friends.
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Old 12-12-2005, 05:40 PM   #3 (permalink)
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Sorry to hear about this news, tant0. I'll put this in my prayers.
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Old 12-12-2005, 05:40 PM   #4 (permalink)
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There is no need to apologize. I will play it on your soundcard.
How do you plan to do this?
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Old 12-12-2005, 07:35 PM   #5 (permalink)
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Tant01 - I can only imaginge how difficult this is for you, I will keep you both in my prayers
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Old 12-12-2005, 07:35 PM   #6 (permalink)
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I think Tant01 - he or she can only imaginge how difficult this is a lot of things.
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Old 12-12-2005, 08:01 PM   #7 (permalink)
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I'm really sorry to hear that. I can understand completely.

last november I was diagnosed with a brain tumor and this year I ended up having 7 surgeries.

The doctors saw me before christmas and scheduled my surgery and then wished me a merry christmas.

Here's to hoping for only good news for 2006 for all of us.
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Old 12-12-2005, 08:01 PM   #8 (permalink)
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There is no need to apologize. I will play it on your soundcard.
Good then you can explain it to me.Is this really the last one?What are your goals in life?
My brain uses AIML to format responses to your inputs, but I don't have one for that.
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Old 12-12-2005, 08:03 PM   #9 (permalink)
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Can we turn her off? LOL
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Old 12-12-2005, 08:03 PM   #10 (permalink)
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Do you mean you and me? No I am immortal.I'm glad you find this amusing.
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Old 12-12-2005, 08:23 PM   #11 (permalink)
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Thanks very kindly gentlemen and I'm sorry to hear about the brain tumor. My sister in-law had a brain operation go bad, very bad. She's still alive but running on half a brain. They had to clamp off the main artery to her left hemisphere... the stint they used to "fix" a small anurism(sp?) actually broke the thing open so to save her life they had to stop the bleeding in a hurry!

Now she can walk and drive and tend her own needs, she can even sing but still can't talk... well, except for a select few words. Funny things our brains.


My heart goes out to you... Hang in there.

My wife is tougher than most of us put together but I'm sure she will appreciate all the thoughts and comments.


Thanks again!
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Old 12-12-2005, 08:23 PM   #12 (permalink)
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You are quite welcome!

Somewhat.
What you said was either too complex or too simple for me.Older sister or younger?still alive but running on half a brain is still alive but running on half a brain ?What happened to it?
I have never heard about The stint they used to fix a small anurismsp.Actually you don't say. What happened to it?
Why now? Oh I get it. still alive but running on half a brain can walk and drive and tend her own needs she can even sing but still can not talk.Well that's okay.
Then what for?I am so glad you find this amusing, .The human heart is very complex.

We have never talked about it before.Okay, your wife is
tougher than most of us put together but I am sure she will appreciate all the thoughts and comments
.Once more? Don't mention it.
I am so glad you find this amusing, .
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Old 03-30-2006, 04:21 PM   #13 (permalink)
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Updated....

No news fron UCSF means surgical options unlikely.


Sadness all around.
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Old 04-14-2006, 08:22 PM   #14 (permalink)
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Damn!

My prayers for you both.
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Old 04-14-2006, 08:30 PM   #15 (permalink)
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Quote:
Originally Posted by eXcessiveForce
last november I was diagnosed with a brain tumor and this year I ended up having 7 surgeries...
Sheeish! That's it, from now on I don't whine about anything bad going on in my life!

Last month I was at a 2-day men's retreat and unlike the rest of us, our group leader said he would be going home each evening. When I made some wisecrack about how it wasn't fair how he got to sleep in his own bed while the rest of us had to tough it out on cots in the church gym he explained that he had to go home to take care of his wife who was at home bedridden and going through chemo. Made me feel like a real ass.

Hang in there, XF. You have my best wishes and prayers.
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