MT: Gilbert woman getting word out on bleeding disorder

[Knowledge Bot]

Gilbert woman getting word out on bleeding disorder By Kacey - 02-13-2008 10:55 PM

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I'd never heard of this disease before - so I thought I'd spread the information around.

Quote:
Those who suffer from the disease have a less than normal amount of the protein that makes blood clot. Another type of von Willebrand is when someone has the normal amount of protein, but it doesn't work right.

While it's common, it's a disease that can go unnoticed. Its symptoms that in women are often seen with heavy menstrual cycles are usually dismissed for other ailments, Fey said

Many times, it can lead to women having unnecessary hysterectomies, Fey said.. Last year, she went to a von Willebrand conference and was the only one in the room that had made it to 30 without the surgery.



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[Little Apple]

I have the opposite of that. Only half of the enzyme that stops clotting and later brakes them up. Lots of people have one deficient gene of stuff like this but don't catch it because it's rarely tested for.